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| Web Pages |
| Ehlers-Danlos National Foundation |
| Provides support and information to those affected by Ehlers-Danlos syndrome and their families. |
| Canadian Ehlers-Danlos Association |
| Working together to provide assistance, support and resources for people living with this rare genetic disorder. |
| Arlene Brandeis' Intuitive Art |
| An expression of the loss of family members to genetic anomalies including Ehlers-Danlos Syndrome, Acute Intermittent Porphyria, and Hypolipoproteinemia. Information provided about each. |
| Damaged - A Journal |
| The personal diary of a young woman learning to live with Ehlers Danlos Syndrome. |
| Ehlers-Danlos Hope |
| Personal plea for help from a sufferer in Syria. |
| Ehlers-Danlos Syndrome Support Group |
| This site offers extensive information for patients and doctors, plus links. |
| Ehlers Danlos Foundation of New Zealand |
| Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public. |
| New York / New Jersey Ehlers-Danlos and Hypermobility |
| Details about this support, message and discussion center. Includes a search feature and posting a message. |
| Ehlers-Danlos Syndrome Information |
| A brief description of EDS and how it is inherited. Edited by Frederick Matsen III MD Chairman, Department of Orthopaedics, University of Washington, Seattle, USA. |
| EDS Today |
| The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide. |
| Ehlers-Danlos National Foundation - Michiana Branch |
| Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps. |
| NORD: Ehlers-Danlos Syndrome |
| EDS disease information from the National Organization for Rare Disorders. |