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Web Pages |
The Natey Foundation |
Information for parents and families of Battens victims. |
Batten Disease Information Page |
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
Batten Disease Family Association |
Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom. |
Nathan's Battle |
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure. |
Batten Disease Support and Research Association |
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients. |
seeAbility - Juvenile Battens Disease |
An in depth article on this disorder, includes the stages of the disease and the symptoms. |
The Luke and Rachel Batten Foundation |
Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease. |