Pierre Robin Syndrome Home>Conditions_and_Diseases>Rare_Disorders>Pierre Robin Syndrome     Web Pages Pierre Robin Network Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts. Contact a Family: Pierre Robin Syndrome Main features of the condition and possible causes. Chase's Story Personal account of one child's experience of this condition. Includes photographs. NORD - Pierre Robin Syndrome Sample report, plus links to organisations. [Fee required for full report]