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| Web Pages |
| The CaF Directory |
| Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing. |
| The Andy Fund |
| Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene. |
| National Foundation for Ectodermal Dysplasia |
| ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services. |
| The Ectodermal Dysplasia Mailing List |
| Includes instructions on joining the list, FAQs and links to further resources. |
| Ectodermal Dysplasia Society |
| Information about the organization as well as the ED condition. Includes links, news articles and contact details. |
| NORD: Ectodermal Dysplasias |
| Offers synonyms, a general discussion and resources. |