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Web Pages |
Children's Brittle Bone Foundation Website |
US organization. Online grant and fellowship applications with news about recent and upcoming events. |
Osteogenesis Imperfecta Foundation |
Supports and encourages medical research and disseminates information to patients, their families, and medical professionals |
Osteogenesis Imperfecta Network |
Dedicated to support others dealing with the disease. |
Osteogenesis Imperfecta: The Links to Nutrition |
Reviews the possible role of nutrition in this disorder. Questions whether it is solely a genetic condition. |
Osteogenesis Imperfecta Information |
Resources gathered by the mother of a child with the diesase. Includes a personal page about her son Jojo, his disease, treatment, and progress. |
The Osteogenesis Imperfecta Mailing List |
For the discussion of any issues relating to OI. Open to both professionals and families. |
Brittle Bone Society |
The UK charity providing support for people with osteogenesis imperfecta. |
The Bone Page by Dr. Horatio Plotkin |
Bisphosphonate FAQ, bone density, and other information for families dealing with OI. |
Osteogenesis imperfecta hub |
Links to overviews, clinical trials, images, research articles and abstracts for osteogenesis imperfecta. |