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Web Pages |
The Personal Side of Craniofacial Differences |
Personal accounts of living with craniofacial conditions, and related webrings. |
Acne Support Group |
Information and support on acne, including top ten tips, beauty tips and problems. |
Disfigurement Guidance Centre |
Support and information for people with facial and other disfigurements via post or telephone. Details of International Skin Laser Directory and booklets. Based in Scotland. |
FACES: The National Craniofacial Association |
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization. |
Crouzon Support Network |
A network designed to offer support to individuals and families dealing with Crouzon's Syndrome and other craniofacial anomalies. |
Moebius Syndrome |
Moebius Syndrome support, information and resource site. |
The Journey to Sara's Smile |
Canadian surgeon Dr Ronald Zuker performed nerve graft surgery to remedy Sara's left-sided facial paralysis. |
Sincere Meditations |
Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences. |
AboutFace |
International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements. |
Changing Faces |
UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them. |
Support Works Online |
Resources to find or form support groups related to facial difference. Information on medical research. |
The Craniofacial Foundation of Arizona |
Provides information and support for people with head and face disfigurement. Happy Faces Family Network is a non-medical organization of volunteers, aiming to raise public awareness of craniofacial problems, promoting community acceptance and understanding. |
University of Florida Craniofacial Center |
Serves patients with craniofacial malformations and their families, conducting research, and educating students and professionals in the discipline of craniofacial science and related healthcare. |
The Craniofacial Society of Great Britain and Ireland |
Information about the society, which is a multidisciplinary forum for specialists. |
The DRM WebWatcher: Facial Differences |
A Disability Resources monthly guide to online resources about craniofacial differences. |
Let's Face It UK |
Friendship and support for people who have a facial difference. |
Birthmark Support Group |
From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. |
The New Face Foundation |
A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate. |
Cancer Of The Eye Linkline (CELL) |
UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links. |
XP Support Group |
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions. |
Children's Craniofacial Association |
Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. |
Let's Face It USA |
A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles. |
John Hopkins Center for Craniofacial Development and Disorders |
Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center. |
Beneath the Surface |
Offers support and understanding to individuals of facial difference. |
Crouzon's Bridge of Hope Foundation |
Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome. |
Foundation for Faces of Children |
Expert information for families and health care professionals about craniofacial conditions. |