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Web Pages |
International Huntington Association |
Federation of national voluntary health agencies. |
Huntington's Disease Clinic |
Information on Huntington's disease, research, and its management. |
Caring for People with Huntington's Disease |
Information about caring for people with Huntington's disease, for patients, families and professionals. |
CureHD Foundation |
A charity site aiming to spread awareness, information, and news about Huntington's disease. |
Huntington's Disease Society of America |
Research, assistance, and education. |
Huntington's Disease Association UK |
Supports people affected by the disease and provides information and advice to professionals. |
UCHC Huntington's Disease Program |
Services of the Huntington's disease program of the University of Connecticut Health Center. |
Tony's Family Site |
A personal website detailing how Huntington's disease has affected Tony's family and friends. |
Huntington's Disease Advocacy Center |
Information, questions and answers, problem-sharing, personal experiences and articles on Huntington's disease. |
Huntington's Disease Information |
Comprehensive resource on Huntington's disease. |
HDSA, Arizona Chapter |
Contains general information about Huntington's disease and specific information about this chapter's fund raisers and events. |
John and Jean's Story |
A personal website with the story of a family affected by Huntington's disease (UK). |
Neurology Channel - Huntington's Disease (HD) |
Introduction to Huntington's disease, and an ask a doctor forum. |
Queensland Australian Huntington's Disease Association |
Gives information on Huntington's disease, services available in Queensland Australia and links. |
Nutrition for People with Huntington's Disease |
Nutritional information, and resource links on aspects of nutritional care for people with Huntington's disease. |
Huntington's Disease Program UCHC |
Services of the Huntington's disease program of the University of Connecticut Health Center. |
Huntington's Disease Facts at a Glance |
Huntington's disease facts listed concisely. |
Healthubs |
Links to overviews, clinical trials, case reports, diagnosis, treatment, research programs on Huntington's disease. |
Huntington's Disease |
An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
Australian Huntington's Disease Association Inc. |
Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW. |
The Huntington's Disease Lighthouse |
Current information on treatments, drugs, support and patient resources. |
Shana Martin |
The author is at risk for Huntington's Disease, so there is a lot of information on that subject, as well as her personal story. |
Huntington Disease Medical Clinic |
The clinic provides care from several perspectives for individuals with Huntington Disease (HD) as well as their families. Based at the University of British Columbia, Vancouver, Canada. |
Hungtington's Disease - Understanding Behaviour |
Article by Dr. Jane Paulsen. Resources for families living with Huntington's Disease. |
Juvenile HD |
Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assisstive technology, support links, and benefits/insurance. |