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| Web Pages |
| Tuberous Sclerosis Association |
| UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition. |
| Tuberous Sclerosis - Lisa's Site |
| An incurable genetic condition that causes tumors to grow in various places in the body. |
| Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program |
| Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis. |
| TSCTalk |
| Mailing list and discussion boards for patients and professionals. |
| Tuberous Sclerosis Hub |
| A brief definition of, followed by links to overviews, research articles, case reports and images. |
| Tuberous Sclerosis |
| A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
| Kolten's Tuberous Sclerosis Page |
| Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him. |
| National Library of Medicine |
| A list of synonyms, a summary and major features of tuberous sclerosis. |
| Pediatric Database |
| A definition of tuberous sclerosis, followed by the epidemiology, pathogenesis, clinical features, investigations and management. |
| Pediatric Oncall- Tuberous Sclerosis |
| Offers commonly asked questions about this disease. |
| Tuberous Sclerosis Fact Sheet |
| Developed by the National Institute of Neurological Disorders and Stroke (NINDS). |
| Information and support for persons affected by Tuberous Sclerosis Complex in Canada. |
| Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections. |
| Marian's Life with Tuberous Sclerosis |
| Marian's story. Information about the disease, pictures, contacts, medicine, links. |
| NORD: Tuberous Sclerosis |
| Offers alternative names, a general discussion and further resources. |
| Team Tamara |
| Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates. |
| Matthew's Site for Tuberous Sclerosis Awareness |
| Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories. |
| Tuberous Sclerosis Alliance |
| US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families. |