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Web Pages |
Monicas Lupus Story |
A Story of a systemic disease sufferer in the UK, with additional informational directory. |
Loonie's Lupus Page |
Outlines different types of the disease, directory of support and informational sites, and share a personal experience. |
Follow My Lupus |
Follow Brett Borowski from initial diagnosis in 1994 to the present, including treatment with Cytoxan. It includes a narrative account, lab results, medications, and other resources. |
Lyssa Ann Living with Lupus |
Personal story of one patient with insights regarding coping emotionally, raising children, and dealing with the unpredictable disease. |
I Fell Down: A Story of Lupus |
The author tells about her life with this disease. Find support, links, chat and prayer. |
Terri's Angels of Hope |
Learn about Terri's struggle, about her disease, and her life through an online journal. Chats and message boards for fellow sufferers including lupus, COPD, and congestive heart failure. |
Sarah's Lupus Webpage |
Directory of pamphlets, articles, and personal stories to learn more about the disease, coping mechanisms, and support. |
Lupus and Art |
Jaynee Levy-Polis shares her personal experience with mild Central Nervous System disease as well as information about symptoms, treatments, and coping. |
Miller, Cyndee |
General information, personal experiences, a 30 year Lupus patient, with extensive links. |
KC Dockal alt.support.lupus FAQ |
Frequently asked questions and answers addressing symptoms, treatments, common diagnostic tests and procedures, and filing for disability in the US and UK. Also includes information on the usernet alt.support.lupus. |
Wendy's Pages |
A web site with Lupus and Fibromyalgia information, links, and personal stories. |
Living with Lupus |
Directory and support for people living with this, and other autoimmune conditions, as well as their family and friends. |
The Lupie Bin |
Lupus information, support, stories and FAQs. Questions from fellow lupies and their friends and family are welcome. |
Lupus Den |
Information and support for men, women and children with this disease. |
Snapshots of Lupus |
A collection of photos and biographies of patients; plus online awareness activities. |
The Lupus Site |
Diagnostic information, tests, medications, advice, support, forum, and survey with over 150 pages of information. |
Michelle Soignée |
Includes photo of discoid rash, causes, and treatment courses. |
Lupus Information Center |
Health through knowledge and power: information, statistics, little known facts, common misconceptions, and more than 60 personal stories. |
Lupus Living & Fibromyalgia |
Patient and RN present facts and support group for living with the disease. |
Lupus Patients Understanding and Support |
Maintained by consultant rheumatologist and featuring information and support for patients and those with variant and other autoimmune connective tissues diseases, such as Hughes syndrome. |
Women's Info Page |
Both general and personal disease information, and how to get free medications. |
Lupus Family Circle |
Information about Lupus, news updates, forums for sharing personal experiences, a support group and resource links. |
A Fight For A Cure |
A personal story about life with lupus. |
But You Don't Look Sick? |
Includes personal stories, product reviews, links. |
Ritter-Bright, Dionne |
After 16 years with SLE she needs a transplant. |