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| Web Pages |
| Ben's Dream |
| Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter. |
| Pediatric Database |
| Offers a definition, the epidemiology, pathogenesis, clinical features, investigation and management. |
| MPS III: Sanfilippo Syndrome |
| Information, including the causes, different forms, the inheritance and how the disorder progresses. |
| Children's Medical Research Foundation |
| A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome. |
| Bennett Children's Foundation |
| Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support. |
| NORD: Sanfilippo Syndrome |
| Offers a list of synonyms, a general discussion and further resources. |