DES Syndrome
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Web Pages
DES Action USA
Non-profit organization dedicated to informing the public about DES (diethylstilbestrol) and helping DES-exposed individuals. Publishes on various aspects of DES exposure and provide a link between DES-exposed people, researchers, and the medical community.
Questions and Answers About DES
Information from the National Cancer Institute about DES (diethylstilbestrol) and its potential effects on mothers who have taken the drug and daughters and sons who were exposed to it in utero.
DES Daughters Mailing List and Online Support Group
Email online support group for daughters exposed to diethylstilbestrol (DES), which can result in infertility, reproductive abnormalities and other problems. Password-protected bulletin board, live chat and virtual seminars.
Images of Uterine Deformity Caused by Diethylstilbestrol Exposure
Two uterine images of a 35 year old female with known history of exposure to DES. Department of Radiology, Case Western Reserve University, Cleveland, Ohio.
Testimony on DES
Stephanie Kanarek's testimony before the US House Judiciary Committee on the effects of diethylstilbestrol.
DES Cancer Network
Organization that addresses the special needs of women who have clear cell adenocarcinoma of the vagina and/or cervix, a rare cancer linked to exposure to diethylstilbestrol before birth.
Registry for Research on Hormonal Transplacental Carcinogenesis
International research registry of cancer patients with clear cell adenocarcinoma of the vagina and/or cervix or other specific gynecologic cancers who may or may not have been exposed to diethylstilbestrol (DES) or other synthetic hormones in utero.
DES Stories
DES Stories is the first book of photos and stories of DES daughters, mothers, and sons with DES history, research, and resources. In photographic portraits and interviews, DES daughters, mothers, and sons tell, in their own voice, what it’s like to be DES-exposed.
Health.nsw.gov - DES
Information about effects and symptoms of DES.