|
Web Pages |
Call Again Soon |
Directed at making life better for people affected by Leukodystrophy and those who know and love them. |
United Leukodystrophy Foundation |
Nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in their health. |
Leukodystrophy |
CHORUS document on the different types of Leukodystrophy. A little technical. |
Aicardi-Goutieres Syndrome |
News, descriptions, contacts, and other information concerning this leukodystrophy. |
Alexander Disease |
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
Devoted to Brianna |
Medical experiences and terminology helpful for parents to understand and cope with genetic disorders. One little girl's story, concerning Canavan Leukodystrophy offers help and hope to many. |
MCW HealthLink - Alexander Disease |
Information sheet from the Medical College of Wisconsin. |
Leukodystrophy |
A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
Undiagnosed Leukodystrophy |
Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic. |
Family Village / Library / Leukodystrophy |
Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic Leukodystrophy, and Refsum's Disease. |
Leukodystrophy Hub |
A brief definition followed by links to research articles, overviews and case reports. |
Dylan Samuel Freeman |
Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs. |