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Web Pages |
The Ortho-McNeil CF Care Website |
Provides people with cystic fibrosis, family members, and the CF community with quick and easy access to education and information. |
Future Force |
Irish publication including articles on home IVs, nutrition, exercise and first person accounts of living, dying and transplantation. |
Cyber Campus |
A computer course aiming to empower and educate people with Cystic Fibrosis. From the Cystic Fibrosis Association of Ireland (CFAI). |
CF Advantage |
The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz |
PulmonologyChannel |
Information on cystic fibrosis. |
Mamas Health |
Find out what Cystic Fibrosis is, the symptoms and the causes. |
MyCysticFibrosis.com |
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team. |
Cystic Fibrosis Resource Center |
Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards. |
Cystic Fibrosis I.Q. Test |
Test what you know about cystic fibrosis. |
Cystic Fibrosis Health FactSheet |
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format |
Cystic Fibrosis Links |
Cystic Fibrosis Links and Information |
Yahoo! Health - Cystic Fibrosis |
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The Breathing Room |
Guidance about the art of living with cystic fibrosis. |
Cystic Fibrosis Management |
Article detailing therapeutic options for co-management. |
Manual for Cystic Fibrosis Patients and their Families |
From the European Thematic Network for Cystic Fibrosis. In depth information in PDF. |
Jewish Genetic Diseases - Cystic Fibrosis |
Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening. |
It Can't Be CF |
Symptoms, misconceptions, diagnosis stories, general information, links and resources. |
Cystic Fibrosis Western Australia |
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. |
CF Prescriber |
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease. |
Cindy's Friends |
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee. |
The Spirit of Lo - Inspirational Book |
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child. |
Cystic Fibrosis Medicine |
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family |
Saving Russian Children with CF |
Article about saving Russian children with CF. |
Cystic Fibrosis Resource Centre |
A source of information for cystic fibrosis patients, parents, doctors and other carers. |
Sixty Five Roses - Cystic Fibrosis Resource Center |
Provides support, information and answers about this disease. CF news, events, links and chat rooms. |
Home Page-Harminder |
Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true. |
Irri Shark's Page |
About the '65 roses' story. |
A-Z Directory of Cystic Fibrosis Resources |
Biomedical directory with listings of hospitals, charities, research, and information by topic and location. |
CysticFibrosis.com |
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events. |
NHLBI: Facts about Cystic Fibrosis |
Information, diagnosis and treatment options. |