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| Web Pages |
| Hope for Henry |
| This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia. |
| Fanconi Anemia Research Fund |
| To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide. |
| Fanconi Anemia: the Frohnmayer Family's Experience |
| The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi anemia, an inherited, usually fatal illness. |
| Diamond-Blackfan Syndrome |
| A definition, epidemiology, clinical features, complications, investigations and management. |
| International Fanconi Anemia Registry |
| A study being done on patients with fanconi anemia to obtain clinical and genetic information. Genetic counseling and dietary instruction will be provided. |
| Fanconi Canada |
| Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families. |
| Fanconi Anaemia |
| A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area. |
| Fanconi Anemia Fact Sheet - Jewish Genetic Diseases |
| Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources. |
| Fanconi Anaemia |
| A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin. |
| B Positive, Inc. |
| A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas. |
| Alex and Matt Pearl |
| Personal stories of two children fighting Fanconi Anemia. |
| Fanconi Anemia Web |
| An informational site for this disorder. |
| Yahoo! Groups: blackfan |
| Open mailing list for Diamond Black Fan Anemia sufferers. |
| Yahoo! Groups: fanconi |
| Discussion list for fanconi sufferers. |
| International Fanconi Anemia Registry |
| Provides contact information, and an overview of what the study aims to achieve. |
| Family Village: Fanconi Anemia |
| Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease. |
| Adam Day |
| Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund. |
| Fanconi Anemia Fact Sheet - University of Pittsburgh |
| Brochure about its diagnosis and treatment published by the University of Pittsburgh Department of Human Genetics, including links to support and diagnosis resources. |