Neurological Disorders
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Web Pages
International Foundation for Alternating Hemiplegia of Childhood
Run by parents of children with AHC. Provides information, support and links regarding this rare neurological disorder.
Spinal Muscular Atrophy (SMA)
Provides information aimed at health professionals about this disease. Includes definition, classification, epidemiology, clinical features, therapy and research into the congenital condition.
Epilepsy in Children
Explores what epilepsy is, how it is diagnosed and surgical and other treatment options.
Integrated Neurocare
An independent service for children and young people and their families in Britain and abroad who may have a suspected neurological or neurodevelopmental impairment.
Understanding Spinal Muscular Atrophy
Offers extensive information for parents about the three forms of this disease: type I (Werdnig-Hoffman disease), type II, and type III (Kugelberg-Welander).
Brianna: Canavan Leukodystrophy
Personal page about how this neurological disorder affects children and their families. Provides links to resources and support.
NINDS: Infantile Spasms
Information including description, treatment options, prognosis, research and resource links.
Landau-Kleffner Syndrome
Information sheet compiled by National Institute of Neurological Disorders and Stroke.
Epilepsy in Young Children
A support platform for parents and other caregivers of children with epilepsy, consisting mostly of stories of individual children.
Hope for Muscular Dystrophy
Emotional and educational support for families who would like to learn more about this disease. Includes articles and stories.
L'Oiseau Bleu (The Blue Bird)
Non-profit organisation to fight against Sclerosing Subacute Panencephalitis, a.k.a. Van Bogaert Disease, a progressive neurological disorder caused by the measles virus. Includes information about the disease.