| |
| Web Pages |
| The CaF Directory |
| A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom. |
| Shwachman Syndrome |
| A mothers story to diagnose this disorder before a team of doctors could. |
| Pediatric Database |
| A definition of Shwachman-Diamond syndrome, the epidemiology, pathogenesis, clinical features, investigations and management. |
| Shwachman-Diamond Syndrome International |
| Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available. |
| Shwachman-Diamond America |
| Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research. |
| Shwachman-Diamond Syndrome Family/Friends |
| An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome. |
| NORD: Shwachman Syndrome |
| Offers a general discussion, the synonyms and further resources. |