Myositis
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Support Groups         
 
Web Pages
Myositis Association of America (MAA)
A non-profit organization committed to helping people with inflammatory myopathies through a variety of information and support services.
Jordan's Juvenile Dermatomyositis Diary
The diary of a 10 year old girl diagnosed with this rare disease including her treatment and progress.
All About Shelby: A JDMS Journal
Created to help monitor Shelby's symptoms, progress, and general well being. Listing of her treatments, medications, andlab results. Description of Juvenile Dermatomyositis.
Julia's Juvenile Dermatomyositis (JDMS) Diary
How one family is dealing with this rare auto-immune disease that affects the muscles and skin.
Myositis NW
Information, resources, & events relating to Myositis diseases, plus the author's personal site.
Healthubs
A brief definition of polymyositis, followed by links to overviews, full text articles and support groups.
MDA Dermatomyositis page
Background and references, provided by the Muscular Dystrophy Association.
Stan's Polymyositis Site
Providing detailed, up-to-date information on diagnosis, treatment, therapy, and a diary.
Polymyositis
Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Dermatomyositis
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Juvenile Dermatomyositis Registry
The registry is part of a study to determine prevalence, incidence, and circumstances surrounding the onset of JDMS, and to facilitate JDMS research by physicians and scientists.