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Web Pages |
DMD Pioneers Mailing List |
A mailing list/support group for people living with Duchenne Muscular Dystrophy. Family, caregivers and friends of those affected by DMD may also participate. |
DMD Support List |
Mailing list to provide support for people affected by Duchenne Muscular Dystrophy. |
FSH Friends Forum |
Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy. |
MD-List |
Mailing list to provide support for people affected by all different forms of Muscular Dystrophy. |
The Muscular Dystrophy Forum |
An online support group for people affected by any neuromuscular condition. |
Duchenne Muscular Dystrophy Support eGroup |
International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy. |
Christians With Duchenne Muscular Dystrophy |
Mailing list for Christians who have Duchenne Muscular Dystrophy. |
Dysferlin |
Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B. |
FSH Muscular Dystrophy |
Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends. |
Limb Girdle Muscular Dystrophy |
Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy. |
MDA All the Way |
Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends. |
Muscle Disease |
Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases. |
Myotonic Dystrophy 2 |
Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it. |
PROMM (Proximal Myotonic Myopathy) |
Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation. |
Single Parent Cafe |
Discussion group for single mothers whose children have Muscular Dystrophy. |