Muscular Dystrophies
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Web Pages
Becker Muscular Dystrophy Information Exchange
This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
DMD Options
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
Ask NOAH About: Muscular Dystrophy
The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health).
NINDS Muscular Dystrophy Information Page
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
MDA Ride For Life
Pennsylvania Ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, May 3-4, 2003.
Living For Today, Preparing For Tomorrow
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
Duchennes
Provides links to medical and non-medical organizations and people with Duchennes problems.
A Guide for Parents
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
HealtHub
A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
DMD Information
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
FSH Friends
This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy.
General Practice Notebook - Duchenne muscular dystrophy
Clinically-oriented information.
Dr. John R. Bach - The DMD/SMA/ALS Doc
This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
Muscular Dystrophy Campaign
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
Muscular Dystrophy Community
Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
DMD Information and Resources for Teachers
Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
DMDpioneers.org Forums
Forum about living with Duchenne Muscular Dystrophy. Discuss prolonged survival, daily living and quality of life issues for people with DMD.
Duchenne/Becker Muscular Dystrophy
Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.