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Web Pages |
Becker Muscular Dystrophy Information Exchange |
This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease. |
DMD Options |
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy. |
National Registry of Myotonic Dystrophy and FSHD Patients and Family Members |
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information. |
Ask NOAH About: Muscular Dystrophy |
The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health). |
NINDS Muscular Dystrophy Information Page |
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). |
MDA Ride For Life |
Pennsylvania Ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, May 3-4, 2003. |
Living For Today, Preparing For Tomorrow |
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories. |
Duchennes |
Provides links to medical and non-medical organizations and people with Duchennes problems. |
A Guide for Parents |
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living. |
HealtHub |
A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations. |
DMD Information |
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options. |
FSH Friends |
This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy. |
General Practice Notebook - Duchenne muscular dystrophy |
Clinically-oriented information. |
Dr. John R. Bach - The DMD/SMA/ALS Doc |
This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care. |
Muscular Dystrophy Campaign |
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK. |
Muscular Dystrophy Community |
Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers. |
DMD Information and Resources for Teachers |
Information for teachers of children with Duchenne Muscular Dystrophy (DMD). |
DMDpioneers.org Forums |
Forum about living with Duchenne Muscular Dystrophy. Discuss prolonged survival, daily living and quality of life issues for people with DMD. |
Duchenne/Becker Muscular Dystrophy |
Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy. |