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Web Pages |
Rush Children's Heart Center |
Provides tutorials about cardiac disorders, diagnostic tests and the normal heart for health professionals, parents and children. Includes illustrations, animations and movie clips to aid learning. |
The Baby with Tetralogy of Fallot |
Offers information for parents including brief explanation of the disorder, links and care of the baby awaiting surgery. |
Children and Heart Disease |
The normal heart, defects, heart murmurs, kawasaki disease, treatment, school programs and feeding an infant with congenital heart disease. Information provided by the American Heart Association. |
Hypoplastic Left Heart Syndrome |
Parent's personal account of her child's illness and surgery. Includes links, diagrams and information about the condition and the Norwood surgery. |
Little Hearts |
Provides support and information to families of children with congenital heart disease. Offers useful links, parent matching, email groups and activities. |
Scott's Heart Page |
Personal story about a child born with several heart defects; single ventricle, atrial septal defect, pulmonary atresia, tricuspid stenosis and dextrocardia. Includes some general information and links. |
Carson's Heart Page |
Peronsal page dedicated to a child who had open heart surgery for congenital heart disease. |
Transposition of the Great Arteries |
Provides information about diagnosis, treatment and effects on the health of the child. Written for parents. |
Pacemakers for Children |
Provides easy information for children, about pacemakers, what they do, and the surgery involved. |
Healing Your Child's Heart |
General information for parents about heart surgery from the University of Chicago Children's Hospital. The procdeure, the hospital stay, what to expect as your child recovers, and taking care of your child at home. |
Children's Cardiac Center of Oregon |
Specialises in complex children's heart surgery including repairative procedures, multi valvular replacement procedures, hypoplasty, and AV canal. Accepts children from all over USA and internationally. Also specialising in bloodless surgery for Jehovah's Witness patients. |
Experience Journal - Pediatric Heart Disease |
Features stories and personal experiences from families about what it's like to live with their children's heart disease. |