|
Web Pages |
International Foundation for Alternating Hemiplegia of Childhood |
Run by parents of children with AHC. Provides information, support and links regarding this rare neurological disorder. |
Spinal Muscular Atrophy (SMA) |
Provides information aimed at health professionals about this disease. Includes definition, classification, epidemiology, clinical features, therapy and research into the congenital condition. |
Epilepsy in Children |
Explores what epilepsy is, how it is diagnosed and surgical and other treatment options. |
Integrated Neurocare |
An independent service for children and young people and their families in Britain and abroad who may have a suspected neurological or neurodevelopmental impairment. |
Understanding Spinal Muscular Atrophy |
Offers extensive information for parents about the three forms of this disease: type I (Werdnig-Hoffman disease), type II, and type III (Kugelberg-Welander). |
Brianna: Canavan Leukodystrophy |
Personal page about how this neurological disorder affects children and their families. Provides links to resources and support. |
NINDS: Infantile Spasms |
Information including description, treatment options, prognosis, research and resource links. |
Landau-Kleffner Syndrome |
Information sheet compiled by National Institute of Neurological Disorders and Stroke. |
Epilepsy in Young Children |
A support platform for parents and other caregivers of children with epilepsy, consisting mostly of stories of individual children. |
Hope for Muscular Dystrophy |
Emotional and educational support for families who would like to learn more about this disease. Includes articles and stories. |
L'Oiseau Bleu (The Blue Bird) |
Non-profit organisation to fight against Sclerosing Subacute Panencephalitis, a.k.a. Van Bogaert Disease, a progressive neurological disorder caused by the measles virus. Includes information about the disease. |