Post Polio Syndrome
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Web Pages
Post-Polio Syndrome Central
Search or browse this comprehensive listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.
Gazette International Networking Institute (GINI)
Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsletters, directories, and books about independent living, home mechanical ventilation, and the late effects of poliomyelitis.
Lincolnshire Post-Polio Network
An information service for polio survivors and medical professionals. Website offers an expanding online library of currently over one hundred full text articles on post-polio conditions, plus a bi-monthly newsletter and a categorised directory of healthcare resources with descriptions.
Post-Polio-Med Email List
Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics.
Post Polio Syndrome Responses
A personal web page with links to Polio/PPS and other Disability Information.
Post-Polio Resource Group of SE Wisconsin
Formed by polio survivors to provide information and support to polio survivors and their families and to educate the medical community and the general public about post-polio syndrome (PPS).
PPS Related Events, Seminars and Conferences
Calendar of non-commercial events concerning post-polio syndrome.
Why PPS Is So Hard To Understand-Bollenbach 1999
Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune.
Post-Polio Network of New South Wales Australia
PPS information, Australian Support Groups, Seminars, newsletters, articles and general Australian disability information.
Harvest Center Post-Polio Page
Materials about PPS: including articles, audio tapes, the PPS Computerized Assessment Program.
PPS Survey
A survey for polio survivors with PPS
How to Prevent Further Disability In Polio Survivors - Silver 1999
PPS expert lists things to do and not to do.
Greater Boston Post-Polio Association
Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups.
NINDS Post-Polio Syndrome Information Page
Post-Polio Syndrome information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Saskatchewan Awareness of Post Polio Inc.
Information on polio, post-polio syndrome, diagnosis, treatment, biographies, links to other resources, and equipment for the disabled.
New Jersey Polio Network
Information and news of interest to polio survivors, their families, and the healthcare community. Links, local chapters, newsletter and conference updates, advocacy.
Living With Post-Polio Syndrome
Medical College of Wisconsin, Living with Post-Polio Syndrome, theories, information and a few links
Post Polio Syndrome Forum
A web discussion forum for people who have or think they have Post Polio Syndrome. A forum where all are welcome, and to share from a-z pertaining to their PPS. disability.
North Central Florida Post-Polio Support Group
Educates and informs polio survivors, healthcare professionals and family about polio, post-polio syndrome and care in polio vaccination.
British Polio Fellowship
Information about this British PPS support group. PPS Q&A, publications, library, news and message board.