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| Web Pages |
| Epilepsy Message Board |
| Healthboards.com message board for information and support on epilepsy. |
| Epilepsy-l: Epilepsy support group |
| An E-mail based support group for people with epilepsy and those who care about and for them. |
| Weston Super Mare Branch of Epilepsy Action |
| Provides information about coping with this disease, seizures and convulsions. Details about the various types, and provides free help and advice through the use of its email and telephone help lines. |
| Epilepsy Bereaved |
| Information about SUDEP and other epilepsy deaths. Bereavement support and information on SUDEP research. Free booklet for young people with epilepsy. |
| Epilepsy Support |
| Maintained by someone with the disease, this site offers support, advice, and useful links. |
| People Incorporated Epilepsy Services |
| A guided independent living experience designed to prepare adults diagnosed to live and work on their own. Includes services, history, gallery, opportunities and FAQs. |
| Epilepsy Support Group Eastwood, Sydney Australia |
| Offers information, events, issues, links and contact details. |
| Yahoo! Groups : KuekidsAustralia |
| The Kuekids Australia mailing list is to help parents, families and friends of children using the ketogenic diet who may also have food intolerance problems. |
| Epilepsy Discussion BBS |
| Epilepsy discussion and support group. |
| Yahoo! Clubs: Epilepsy Support Group |
| Supportive club to help those with this disease. Includes free membership, message boards and chat room. Also joining instructions. |
| Cymdeithas Epilepsi Ysbyty Gwynedd |
| Epilepsy Support Group in Wales, UK. |
| Brain Talk Groups - Neurology Support Groups - Epilepsy |
| Epilepsy Support Group sponsored by Massachusetts General Hospital. |
| Epilepsy Action |
| Local branches of national organisation providing support, advice and information on living with epilepsy |
| Epilepsy Surgery Club on Yahoo! |
| Details about this group which is for those who have thought of (or had) having brain surgery or Vagus Nerve Stimulator surgery. Registration required. |
| Yahoo! Groups |
| Yahoo! Directory: As of the entry date, there are 103 epilepsy groups on Yahoo! |
| Yahoo! Groups : Epilepsy-Kids |
| Epilepsy-Kids offers support and information for parents of children diagnosed with any form of epilepsy. |
| Yahoo! Groups : Epilepsy_Surgery_Group |
| We deal with those who have had brain surgery, Vagus Nerve Stimulator surgery, and Gamma Knife Radiosurgery. Our members are here to help answer any questions you may have. All are welcome, whether you are a surgery candidate or not. |
| Yahoo! Groups : Epilepsy_Support_And_Education |
| We are a growing community to help bring people with epilepsy from all corners of the world to share experiences, thoughts, and provide information. All ages are welcome and you don't have to be epileptic to join. |
| Yahoo! Groups : adultswithepilepsy |
| This club is for adults (those 18 and older) to discuss their experiences with epilepsy, including causes, treatment and coping skills. |
| Yahoo! Groups : Rare_Epilepsy_Syndromes |
| Rare epilepsy is very difficult on all families involved. This group has been made to help educate and support these families. Rare epilepsy's include. ESES/CSWS, LKS, LGS, Begnign Rolandic, and any other hard to recognize epilepsy. |
| Yahoo! Groups : Epilepsy_Advocates |
| Our group is made up of people that suffer from Epilepsy, parents of children with Epilepsy, people whom have previously had Epilepsy and friends of those suffering from Epilepsy. |
| Yahoo! Groups : real_epilepsy |
| A group based in Indiana. Epilepsy and seizure disorder resources and support. |
| Yahoo! Groups : Teens_who_have_Epilepsy |
| Talk about strees depersions everything that may come along with have epilepsy. |
| Yahoo! Groups : epilepsy |
| For people with or know someone with Epilepsy. A place to talk, share stories, and for moral support. All ages welcome. |
| Yahoo! Groups : parents-of-kids-with-epilepsy |
| This Group is for Parents of Children With Epilepsy. |
| Yahoo! Groups : Christian-Epilepsy-Support |
| Christian oriented support for people with Epilepsy or family and friends of people with Epilepsy. |
| Yahoo! Groups : Dating-and-Married-Life-with-Epilepsy |
| The purpose of this group is for people to discuss issues that come up when they are dating and when they are married. How do we handle different situations? Are we embarrassed? How do our children handle it? Are people scared of us? etc.... |
| Yahoo! Groups : ChristianEpilepsyPrayerGroup |
| Are you a Christian living with or caring for someone with epilepsy? ... |
| Yahoo! Groups : wivesofmenwithepilepsy |
| It is the hope of this club to address problems, offer support and encouragement to the wife whose husband has epilepsy. |
| Yahoo! Groups : epilepsychat |
| A Place For Chat, Info, Support And To Have Fun |
| Yahoo! Groups : TLE |
| Discussion of temporal lobe epilepsy and/or partial complex seizure disorder. For sufferers and friends/family of sufferers. |
| Yahoo! Groups : seizurealertdogs |
| This group unites people who benefit from seizure alert or assistance dogs as well as people with epilepsy who benefit from a dog's companionship. We also Welcome people who want to learn more about these wonderful dogs. |
| Yahoo! Groups : epilepsycured |
| We are people sharing information on curing / preventing epilepsy - seizures. This is a support group for patients, parents, children, familly members ... anyone and everyone. |
| Yahoo! Groups : ketogenic |
| This is a support group for parents, family members, and care givers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders. |
| Yahoo! Groups : doosesyndrome |
| For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as Doose Syndrome, a rare, severe, intractable epilepsy of early childhood. |
| Yahoo! Groups : childhoodepilepsy |
| This mailing list is intended to support parents and other care-givers of children diagnosed with a form of epilepsy. |
| Yahoo! Groups : epilepsycircle |
| This support group is for all who have an interest in epilepsy, whether it is for you, a family member, a friend, pupil or a child that has a seizure disorder or epilepsy. |
| Yahoo! Groups : ToddlerswEpilepsy |
| This is a group for parents with toddlers that have Epilepsy. Parents with infants are welcome too. |
| Yahoo! Groups : worldofepilepsy |
| For people around the globe who have epilepsy and would like to share their recent or previous experience with epilepsy. |
| Yahoo! Groups : epilepsysupport4kids |
| This group is a support group for kids with epilepsy, kids interetsed in improving their condition by natural means. |
| Yahoo! Groups : epilepsypals |
| a club for anyone that has epilepsy, their parents, friends and family. to meet new friends, share info for children to perhaps find penpals. all ages welcome. |
| Yahoo! Groups : lennox-gsibs |
| Lennox Gastaut is a severe form of Epilepsy. This group is for the siblings (brothers & sisters) of those affected by LGS, or a seizure disorder. |
| Chrissy & Friends |
| Non-Profit organization that has support groups for children and teens with epilepsy and parents of children with epilepsy support groups in the NYC area. |
| Lafora body disease research talk |
| This is a site about lafora body disease it has a message board and a links page. |
| Doose Syndrome |
| This is a group about doose and it has links to other websites but almost all information can be seen by non members of the group. |
| Epilepsy Support Group |
| Providing world wide support for people with epilepsy. Includes FAQ's, links, support groups and a pen pal site. |
| Epilepsy Community |
| Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers. |